Been to see Gp today only to be told that despit both her and Neuro thinking it was MS my MRI is clear.
Told her so was my sisters and she has had RRMS for 15 years, she said that she also had a paiteint with ms with a clear MRI.
I know I should be pleased but she says there is nothing more she can do, said what do I have to do then, wait for a big relapse? Will see Neuro for follow up in 6 months and have appt at eye clinic, rheumatology was cancelled by hospital, she said she would find out why, I needed to see someone as something going on.
Having trouble with my legs now and day to day tasks and looking after my children. Not had a full nights sleep for 6 months.
Was on beta blockers, moved on to an epilepsy drug, but not working to help get rid of numbness and headache, told me to stop taking them, think I was put on them cause they thought it was MS.
In end left feeling like a hypocondriact with a prescription for Amtriamine to help with depression, leg jerks and sleep, go back in a month.
Going to try them, but think what’s point in going back? They say they can’t do anything.
The other part of me thinks maybe go down the herbal route? Or push my self hard, do too much and not rest and see if that brings on an attack? They will have to believe me then?
Asked about CFCs, she said Neuro should have picked that up.
Hubbie is pleased MRI is clear and says lets just treat it as cfs!
Think I am going mad!