I have never joined a forum previously and I find it very informative and helpful. Thank you all for sharing your personal experiences.
10 years ago I have been very sick with symptoms similar to MS and I was referred to a neurologist.The left side of my body was really compromised and I was almost unable to walk, I had vision issues and loss of sensibility.I was hospitalised for one week a did a number of tests as the neurologist believed that it was MS.The MRI showed some hyper intense areas in T2 but no active lesions and the LP was clear. The diagnosis was “suspected benign MS” . Not sure what suspected benign SM means…I was told to do another MRI one year later , which I did and was clear “unchanged” and another one 2 years later and it was clear.
Life moved on and I forgot everything. Now On the day of my 40th birthday the nightmare is back … my eyes are playing up , one day I see one day I don’t see, my legs are hurting, I keep tripping, The left side of my body has reduced sensibility, I feel dizzy confused and extremely tired and depressed.I thought it was work related stress however when I visited a neurologist he has mentioned that I have SM symptoms , pyramidal weakness,PARD etc. He did the blood exams and are clear and after he insisted I did an MRI with contrast. There are no lesions and the fainted bihemisferic Deep white matter hyper intensity is non specific and of doubtfull clinical importance. There is some moderate disc disease in c5 -c5. I send the results to my neurologist and she insists to do again the LP which I don’t want to repeat as I did it 10 years ago and It was negative. How many times I need to do it ?Does any of you had any similar experiences? Can I have MS with a negative MRI and clear LP ? I just want this to be over and the doctor to confirm that either I have or I don’t have MS .It has been 10 years now and I have learned to live with my issues here and there but I really don’t want to go through the diagnostic inter again to be told that they “suspect MS” but they don’t know yet. Is it worth seeing an SM specialist doctor privately? I was asked £300 which is a lot of money and I cannot affford to pay.I am getting stressed and I just want this to be over.