Mobility struggles

Primary progressive MS
1

Hi
I wS duagnosed wuth ppms in 2016 a d another condition last year.
Fir about 2 years now iv been unable to walk independently. I can take a few steps using a walker but im unable to trasfer from one foot to the other on my o
wn.

I was wondering if anyone had similar mobility issues and what if anythi g was heloful

Thanks christine

2

Hello Christine,
How are you? I’ve had RRMS since 2000 but this year has been particularly difficult, mobility being one of the struggles.
I’m currently working on my odd toe-heel walking, which should be other way round.
The physiotherapist has given me a few exercises to do each day and I’m starting to see it gradually improving my gait.
Perhaps physiotherapy can also help you with your mobility struggles?
I find doing the exercises little by little, a less is more approach, is actually quite beneficial.
Nice meeting you, all the best,
JP

3

Hi and thanks for your reply.
It sounds like uour physio sessions are helping you.
Iv had physio with tge ngs but its finished now and not much had changed.

Can i ask you if your physio sessions are wuth the nhs or private.

Thanks christine

4

Hi Christine,
I’ve been having NHS physiotherapy on and off for quite a number of years now, but it’s only this year that I realised I’ve been doing it all wrong.
Rather than doing too much, too soon and too quickly, you should instead treat it like a marathon and not a sprint; I suppose it’s just like taking medicine.
And do the execises that you feel comfortable doing; I tend to avoid the balance exercises simply because I fall over. Physiotherapist says that’s fine, you don’t want to injure yourself.
Very much hope physio can help you with your mobility struggles.
Best regards,
JP

5

I was diagnosed with PPMS in 2018, I think it was 2021 I stopped being able to walk at all. I was given a manual wheelchair and now I’m in an electric wheelchair which is helping but transferring from the wheelchair to a toilet or to bed is difficult.

The NHS has discussed giving me a hoist to help with this but I am against that, just like I was with a wheelchair as I know once I start using it, I will just be reliant on it and won’t look back so I’m happy to do it the hard way for now.

I will say to you, the wheelchair has helped me become more independent. With the electric wheelchair, who knew all those years playing on a playstation had some benefits