Hello all. I’ve been lucky to have slowly progresssing PPMS until recently but these past few weeks I’ve really taken a nosedive and slowed right down. My mobility is very poor, just struggling to move around the house using the furniture to lean on and a Zimmer frame. I’ve had a recent fall where I was unable to get up and had to havethe ambulance service out to get me up again. My left foot won’t pick up at all and just drags along the floor. In all I’m finding it exhausting and quite worrying. I dread having to go into a care home but can visualise this happening eventually now. My gp wants to see me face to face in January but I know there’s really nothing she can prescribe to help me. It’s hard to stay positive at the moment.
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Hello sweetheart.
I have had PPMS 25 years and can do little for myself.
I have carers twice a day.
Could this be arranged for you to avoid going into a care home?
Boudsx
Hi, thanks for your message. I’ve had PPMS for nearly 20 years with slow progression. The problem is my home isn’t really ideal for me. Steps, uneven floors, old cottage. But I love it here in my community and would be devastated to leave it. I couldn’t use a wheelchair indoors and I’m concerned that I’m getting closer to needing to. I’m thinking about carers and finding out more about this. I’m lucky to have my son living here albeit part time so I do have some support and help to do the household tasks.
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