Thanks for reading and letting me know your thoughts Chrissie.
It is very much a question of seeing what the urologist has to say. But judging from the last time it was mentioned to me by a urologist, she seemed to think it’s straightforward and a simple matter. At the time I’d never heard of such a thing so went for the easy option of the SPC.
The Mitrofanoff Support group have a forum which is hardly used. The majority of comments on there are very positive. There are just a few that have reported problems with having had the procedure and / or with the actual Mitrofanoff means of bladder emptying. Sometimes it’s problems with the channel closing up, sometimes with bladder stones. Often there are problems associated with the Mitrofanoff, but not actually the Mitrofanoff itself, lots of people have bladder augmentation or bladder creation simultaneously, which can cause problems all of their own. At least I wouldn’t have that to worry about.
It would have been handy to have heard from someone with MS, particularly someone else with quite severe mobility issues, since that is what bothers me the most about the procedure. I worry that it will have a negative impact on my already limited mobility. But then, I had a colostomy last year and that didn’t have a real impact.
I suppose it’s more a case of worrying about the unknown.
At least the Mitrofanoff is reversible (I believe). So if it didn’t work, I could just revert to ISC or SPC.
Again thanks. It does help to concentrate the mind on potential problems and pitfalls, just to write out what my concerns are and to be able to have a sounding board.
The forum is marvellous for that.