So, a couple of weeks ago I posted about a Mitrofanoff procedure. This is where a urology surgeon creates a new conduit into your bladder using the appendix and through which you ISC.
I saw the surgeon today and she has agreed to give it a go, but with a caveat: ie. that it may not resolve the issue I have which is a constant feeling of needing to urinate. She said because it could be a nerve problem and therefore not actually curable by going into the bladder by a different route.
My feeling has been is that the problem is essentially due to damaging the urethra by ISCing all the time and was thinking that by not using the urethra the feeling would just go. But she has said it may not work like that. So I could end up with having had the surgery and still having the constant urge to wee.
Ultimately, if that happened, I would be back at the point I’m at now. Since I would be able to just revert to urethral ISC.
So what have I got to lose? It’s just a bit of surgery. And some time of recovery.
Has anyone got any thoughts they could help me with? Either anyone who’s had similar problems with feeling like urethral catheters are causing trauma to the urethra. And if so, have you managed to do anything about it? Or anyone who’s just had to learn to live with a constant feeling of needing to wee (and if you have, how?) Or of course anyone who’s either had a Mitrofanoff or considered and decided against it.
I’ve said that I’ll go ahead with the surgery, taking on board the risk that it may not work, but obviously I still have a couple or so months during which time I could still change my mind, so any thoughts, from anyone, are welcome.
Btw, I don’t have bladder or urethral spasms, so that’s not the issue, urodynamic testing didn’t show anything up at all. And I don’t feel like it is spasm related.
Thanks for reading and if you can help me by thinking of questions, thoughts, solutions (if there are any?), I’d be most grateful.
(I’m posting this on both PP and EL because some people tend to stick to mostly one or the other.)