Great post i feel i know you a bit better now. I just knew you were highly intelligent and some how came across medical but hey google is our friend is it not. (Although when i taught it someone asked me how to find out about Beano comics (old), so we put Beano into the search engine at the time and i wont errr tell you what came up lol…thankfully there are better filters now lol).
Anywoo you wrote.
I guess one step at a time. Take it day by day. Even as I write this I am feeling myself nodding off and will probably leave work early to go home and sleep. Which sucks.
Years ago when this started, so between 2000 and 2006 lots of things went on unexplained. One of them was me so tired i could barely function at work. Meetings i would find myself nodding off, and getting pins and needles in my legs. I was an IT. tutor but also a manager developing all the accreditations in 11 centres for a local college. I was in charge of 54 tutors. My job was ace i loved it. I was non stop driving, meetings, working. I was allowed to work at home and i found myself doing that more and more.
My PA would find me around 3pm asleep in my office. I have never done that in all my life i cant even do it now. But the heat in the office was just draining sucking the life out of me. I have no recollection of falling asleep would just wake up being gently shaken awake. Perhaps your where i was now. I had no air conditioning in the UK what is that lol. The window didn’t open, so i had a small fan. We did take the temperature in my room and it was ridiculous. I refused in the end to stay in there and that is when i went home to finish off my work which was mostly administrative anyway.
Perhaps your office is too warm for you? Even a shower now hun, wipes me out TWO DAYS.
I am proud to say since 2000 i have not put weight on, have stayed the same. Partly i think it was having my allergy test done. I know for example if i eat gluten now i swell. I seem to get swollen hands and my feet puffy. So like you with your red meat i do try to limit it. I am half Italian and not eating pasta is like murder for me. I know i was naughty yesterday i had a double whammy, LASAGNE. gluten and red meat. = result = massive tingly legs and burning on both sides. Was it all worth it to eat the forbidden fruit lol, you BETCHA lol, the sensory stuff will hopefully calm down. But it was delicious.
Anyway I have worked out my calories now. I am more sedentary so i eat less calories, and chucked out my dinner plate, and have smaller portions.
The trick too is you must have breakfast and 3 meals a day. I find food makes me fatigued if i eat a bigger meal it kind of wipes me out. It also increases our core temperature which makes us fatigued as our body processes it. Any rise in core temp for us = fatigue. So i eat 3 small meals a day and lots of water with it. I never get tired now in the afternoon not sleepy tired, yes i get fatigue but the type of fatigue you get when a battery is winding down, i loose my energy so i always rest in the afternoon, and i go to bed early. I am now on my own so it doesn’t affect anyone but me. Some of my friends just have to sleep since i left work and got myself into my routine i never fall asleep in the day, but wiped out by 6pm, and asleep usually by 7.30.
HEAT is the worse thing for us, it will wipe us out, melt us into jelly blob.
I watch what i eat, i love fish and i can live without red meat lol…switch? My husband loved red meat and hated fish he said it tasted like metal… but he loved fish and chips (in batter the fish). I used to make beer batter, and he would eat a nice piece of cod covered in that, anything with alcohol in it lol. bless him.
There are meds to help MS fatigue. Some people swear by them. I don’t take any meds for my MS with PPMS its just a case of dealing with the stuff that comes with it. I have learnt what i can and cant do with it now.
I try to walk a tiny bit every day, and do a few things. But i haven’t put weight on still the same from 2000 i am so pleased with myself. I eat a ton of strawberry and blueberry, love them, well i am careful as they are high in sugar but have some good stuff in them especially blueberries. I eat grapefruit for breakfast, and clementines as well. In the UK its advisable to keep up our vit C with the cold air and well this year we have been hit hard with a nasty virus. So i try to protect myself as much as I can.
Your in a difficult position at the moment transition. You want to work still and live as normal life you can, so you have to adjust some of the stuff around you to have the energy to do so. If you are planning to go out again, if you can have a nap earlier before you go out. i do that if i am going out at night i will try and have a nap in the afternoon not always able but i try.
Hidden depression can cause fatigue too. Just fighting the disease is exhausting. I asked my neuro why is it when i walk outside my home i get so tired my balance goes and i have fallen many times. He said its because your brain has to keep you safe as your in an environment it doesn’t know, when your at home it knows so you are less tired getting around familiar places. He didn’t say it quite like that but that is the gist of it, and it makes sense. Our brain exhausts us trying to deal with our normal life.
I know when i have really bad MS fatigue it feels like the worse flu without the temperature. I just melt into the recliner and can barely move even for the loo. But i am not sleepy tired.
Have you been checked for all the vitamins, B12, magnesium and Vitamin D?
Anyway i have blabbed on as i do, i am tired as my spelling is deteriorating lol thank god for auto spell. That was another one of my weird symptoms. I would write exercise books for Microsoft products for my students and read it back it wouldn’t make no sense lol. my spelling well i became dyslexic still am to be honest.
I hope you have a better day.
Enjoy your red meat there is no proof diet makes any difference, wellbeing and happiness make the difference and if a slice of red meat on the barby makes you smile like my lasagne then go for it.
This is a good article about fatigue maybe you should print it off.