Hello to all,
I received a letter from my Neuro a few day’s ago stating that I had tested positive for oligoclonal bands following my LP, no surprise there as I knew this would be the case, every test so far ( the lp was my last diagnostic test to be completed ) has pointed to a dx of MS being imminent, and I’m due for my next Neuro app on July 4th …
Here’s my confusion / question / worry . . .
It then states that this is suggestive of intrathecal lgG synthesis.
After a quick google I understand ( I may be wrong here ) that this is used as a marker for progression in PWMS, and SPMS was also mentioned.
I just can’t seem to get my head around this, or understand the implications, and now I’m thinking or overthinking that I’m about to be dx with either SP or some kind of aggressive form of MS.
I thought I was relatively prepared for my dx but this has knocked me for six, I know that ms is ms and whichever letters precede the ms are just variants of the same disease but I 'm scared that this implies my ms is alot more advanced than I first thought.
I’ve had various symptoms over the years, possibly as far back as my 20’s and I’m 45 now but could I really have had rrms without knowing ? I know to be dx with spms is pretty rare without rrms being the initial dx.
My main symptom now is mobility which has declined considerably over the last 2 years as in the distance I can or rather cannot walk before needing to rest and although I’ve suspected I’ve had ms for a few years I was thinking I was relatively unaffected by it until now.
Am I letting my imagination run away with me I wonder, can anybody shed some light on this lgG stuff ?
I know I’ve not long to wait for my dx now and I realise how lucky and straight forward my journey has been compared to many others, 5 months in total from my 1st gp app till now, maybe the realisation is finally hitting me, I’ve been so positive but now feeling abit hopeless and more than abit scared …
Thanks so much for reading