Poll, Do you regularly give the catheter a couple of turns - this is so important as the balloon end can so easily get stuck onto the bladder wall - this will result in bleeding. The balloon has little holes in for drainage - and works like a sucker when up against the bladder. Also, if the balloon is too far in it will rub against the uretha - this causes pain and bleeding. The bladder bleeds easily - and although alarming - is not anything to worry about.
You know that l ‘wear my spc’ - very differently to you. Short length cath/ direct connection bag - so no tubing - and no dragging/tugging and more importantly no kinking. lt is more comfortable to move about - transfer etc . and drains better. Even so, l still have to frequently just pull the cath back an inch if it has gone in too far and is causing a sharp pain as it rubs against the uretha. Because the bladder is permanently draining - it will be like a deflated balloon - if you can picture this - so its easy for a balloon to get adhered to the wall.
l do take D-Mannose capsules to keep the bladder healthy - and also drink apple-cider vinegar/honey to neutralise the acid in the urine - as it is alkaline - this balances the PH. Bi-carb works similarly. The caffeine in tea/ coffee/cola is also acidic and will irritate the bladder.
Eating beetroot makes the urine blood red. And still gives me a start when l see it - having forgotten that l had eaten beetroot.
Like you - l love the freedom the SPC gives me. Although, l have asked my GP to refer me for the Sacral Neuro-modulation therapy. As this works on bowels and bladder. So now waiting for an appointment for assessment. lf its found that l am not suitable for this then l am seriously thinking of having a colostomy. Be a proper ‘bag lady’ then - but at least l would be fully in control!! l hate having to live my life loo-orientated. From what the district nurses say - the colostomy is easier then the SPC to manage.
Lots of love to you Poll - hope its not too humid for you this weekend. We have had dramatic thunderstorms and heavy rain - like stair rods. Luckilly, we got the hay in - and under cover before it all started. Good feeling, knowing we have winter feed for the ponies. All safely gathered in.