Hi there, blasts from the past and new ones!
Hope you’re all as well as can be and as humourous as ever. Just thought I’d give a little update now I’ve got a firm diagnosis of… Neuromyotonia (Isaac’s Syndrome).
There don’t seem to be many of us but we’re all buzzing, pinging, zinging, jerking, muscle cramping and twitching, have painful muscles, difficulty walking, slurred speech, fatigue etc much like MS but without physical damage to the central nervous system. It can be diagnosed with EMG and, for me, a positive VGKC test. I’ve got a relapsing remitting version and have just come out of a major relapse which led to me being given a blue badge : (
I’ve no idea what the future holds but I think it’s preferable to MS by quite some way. I’ll post this on the New members forum too in case this helps anyone undiagnosed get on the right path of investigation.
Love to you all,