Well here goes, this is because of the encouragement of Blossom, hopes she reads it.
In March of this year I ended up in hospital because of a UTI and the infection got into my bloodstream and to my Kidneys.
I am now permanently in a wheelchair and unable to transfer, so have to use a hoist.
That includes going to the toilet.
The support I have received has been superb.
It took a month from contacting the OT to getting the hoists installed.
To top that I had a small tear in my left shoulder muscle and my left hand and arm are being affected by MS
I was unable to use my left arm although with steroid injections it has recovered some.
I self catheterise with having only partial use of my left arm and hand has become difficult (absolutely hate doing it). Got an appointment with a urologist at the end of December at which I will discuss having a super pubic catheter. Really don’t fancy one but it’s got to be.
I have also had to give up driving and so have become a little isolated.
My partner became concerned about me not going out and after a few months asked me many times about going out with me giving many plausible excuses.
This came to a head a couple of months ago when it was decided that the granddaughter was to be Christend and the step daughter was getting married.
To get to the dilemma, what happens if you need the loo.
You will be OK I will take you urine bottle and we can also take a catheter my partner said, at which I didn’t reply and remained quiet.
Eventually I blurted out what if I need the loo.
Her turn to go quiet.
Disabled toilets don’t have hoists so what do I do.
Luckily one of my close friends is one of the continence nurses in the local team so I gave her a ring.
Again, luckily I can discuss most things with her.
We discussed my problem and she had a solution. an anal irrigation system.
This involves a catheter being inserted into your bum, a balloon being inflated to hold it in place and water being pumped into your bum.
This has the effect of flushing you out so you can have a worry free day.
It’s a problem that had never entered my head but must affect many people.
Now just got to sort out my cloths but that’s another posting.