Hello
I know there are a couple of people on here considering Lemtrada so I thought I’d give an up date.
I had day 1 of my second round yesterday. I’m having it as an out outpatient this year which is far better. It went fine. I had a very bad headache half way through but is was short lived. Setting off for day 2 in a bit.
My MRI results are in and there has been no change and no change to brain volume in the last year which is good news. My EDS Score remains at 1.
So far so good with the treatment and I would encourage every person eligible for DMT’s to explore the idea of highly effective therapy as early as possible whatever your choice may be.
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congratulations!
i have been following lemtrada since it was known as alemtazumab.
it would have been about 8 years ago when my sister in law brought me a newspaper cutting.
a young man had the treatment and he was feeling so good.
i asked my neuro if i could have it but it wasn’t licensed at that time.
thank you for sharing.
carole x
Hi Humbug
I’m waiting on my second round at the moment which is two weeks overdue at this stage. Word is that I’ll be doing it as an outpatient as well which should be so much easier than last year. Where are you located? I’m just thinking/hoping we might be getting treated by the same people and I might be in your seat next week!