88Oh boy, life’s been a bit of a roller coaster the last couple of years. I sing in a very good choir. We work really hard and after a particularly tough Verdi requiem, I started to become more and more incontinent.
so, I got out my naltrexone pills and made some LDN. It helped but only at night. I’ve had bladder tests( omg, the indignity) and a consultation with the top neuro in Galicia. My neuro wanted a second opinion.
in her view, my MS is aggressive, not progressive. Yay! Still RRMS! I was diagnosed in 2000. I do have to take Fampyra and have been upgraded to Tysabri.
she recommended starting immediately, but it was 8months before funding came through. I’m JC virus positive (scary).
I can have this security for 2 years only. Bugger.
This week I started LDN but double dosing this time and blow me! My incontinence has improved so much that I can manage without pads! I had read about am and pm dosing. Like many people, I have had great symptom relief.
I wonder if other mad experimenters have had symptom relief too?
i also take Sativex. It’s magic, Sativex. Without it the pain is unbearable. My right side spasticity was hideous. But, after a couple of weeks, I could stand and sing again. I just did 2 nights of The Messiah after a very tough week of rehearsals. 8 to-11each night
So thankyou SERGAS, the Galician NHS. Thankyou Dr Laura, my wonderful neurologist.
sometimes good things happen. I just hope I don’t die…those risks & JC virus positive. I’m at greater risk because I had my immune system wiped out by Tecfidera.
its only been 2 months.