Yes, I take LDN. I started it in 08, when I moved to Spain..
I was diagnosed in 2000 and started Rebif pretty soon after and it has worked very well since then.
I was hoping not to have the side-effects and to my great surprise, I didn't. I had to stop the Rebif when I ran out after moving to Spain, so thought that I'd give LDN a try. I did feel great - lots of energy and much improved bladder function. I had less spasticity as well.
So, in 09 on LDN alone, I had a sudden and very severe relapse, which put me in hospital for 2 weeks and I was struggling for months after, with balance problems and muscle spasms.
The local health authority were very kind and agreed to fund Rebif for me and now I take Rebif and LDN.
LDN makes me feel better and it has really helped my bladder function. I have a normal bladder now, which is a pretty big thing with MS.
I've had MS for a long time. My neuro here isn't an MS specialist, but he reckons that I got lucky and that my MS hasn't progressed because I started Rebif quickly, but I don't know. I just think I got lucky.
What I do know, is that MS can be very, very nasty. My first relapse almost killed me and has left me with very bad hypertension - for which I take 3 drugs.
If you are having lots of relapses, then the best thing to do is to try to stop them. I reckon that if Tysabri had been around then, I'd have qualified to start it, but I feel lucky that at least something worked.
I did an interview with Linda Elsegood for the LDN Trust's DVD and I'm happy with it - but I won't take it on its own again. I'm very happy with the combination of beta-interferon and LDN. I'd recommend it for help with symptoms in RRMS.
I don't have a valid opinion on PPMS, but after so many years of reading about MS, it does seem to be quite different. As there's no drug therapy right now, LDN is worth a try.
I throw what I can at the MS. Lots of Vitamin D3, a gluten-free diet, exercise and it's taken a long time to get back to stability, but I'm very fortunate, that despite some dreadful relapses, I'm pretty much back to where I was when I was diagnosed.
I do think that is just luck though.