Just wondering if anyone still on LDN?
I took it for 9 years. Then last September I had been tired for a while. So I co incidentally had a neuro appointment. Told him I was fatigued and wondered if LDN was not working. He said there is not much evidence it works anyway. My regular private prescriber had stopped prescibing. So I stopped. I am still tired and have absolutely no get up and go.
I have had a lot of ENT problems. Allergy I think since stopping
sorry for going on a bit. I should just have asked. Is it helping you?
My GP has prescribed ldn on the NHS since 2004 and I have no intention of stopping. While it’s true there has not been a proper scientific trial, an estimated 100,000 people worldwide take it for a variety of autoimmune conditions, which isn’t too bad for anecdotal evidence.
Frankly, I prefer to trust the evidence of what my body tells me.
I got mine in capsule form and stocked up before my prescriber retired. I am starting back on it today .I can only try and see. Before starting LDN I could not even carry a wire basket round a grocery store with 2 tins in without it being a chore. I have had MS for over 20 years I had regular relapses. Then I have felt previous damage since LDN. Coincidence grown out of it or I have convinced myself LDN suited me. The tiredness is probably getting a 5 year old granddaughter ready for school every morning and looking after the others after school 3 days and a 3 year old all day on one day. Neuro never asks about my lifestyle. Thanks This has been a sounding board for me to actually assess my situation and glad it suits you Also thanks for answering. I think with this unpredictable condition,you start questioning everything
hi MRose, well looking after very young children is enough to wipe a healthy young parent out, let alone a long term MSer!
I tried LDN years ago and the benefit was very short lived, but hey! I gave it a go!
I remember Dr Chris Searle, on morning tv, promoting LDN…it had great success weaning drug addicts off heroine!
Good luck to you and long may you continue with those little people!