Just out of interest Rebecca, why are you refusing to take any of the DMDs?
It is well proven that the earlier in the disease course they are taken the more effective they are at reducing relapses, progression and accrued disability over time. Also new research is proving that they reduce the risk of early death due to MS.
Whereas there is absolutely NO evidence at all that LDN and diet and exercise can control MS.
The side effects of the DMDs are tolerable and manageable in most cases but the disease left to its own natural course can be a seriously nasty beast indeed. It is not something I would take the risk of mucking around with.
Given that there are effective treatments available why are you choosing to risk severe disability, loss of independence, loss of earnings and a potentially shortened life?
The drugs are surely preferable to that?
I am not trying to scare you but I do wonder sometimes if people really appreciate just how debilitating an illness MS can be? It is not a matter of just needing a walking stick in 10 or 15 years time. I have had it for 8 years and I am one of the rare and unfortunate ones who genuinely can’t take DMDs and so the MS has taken its natural course with me.
I am mostly bed ridden, occasionally able to use my electric scooter for short distances, in unbelievable pain, needing care 5 days a week (well, need it 7 days a week but it is only available for 5) and in and out of hospital for management. I truly wonder how things may have been different had I been able to take DMDs and had not been allergic to them.
Please don’t find yourself in 5 years time regretting your decison because with MS there is no winding the clock back…
All the best,