As the old forum’s search facility was broken for a while, maybe the time has come to restart the LDN info/discussion threads?
For those who don’t know, LDN is Low Dose Naltrexone.
I’ll start. I have RRMS. I’ve been on Rebif since 2000. I’ve been taking Rebif+LDN since April 09.
If you go to the LDN Trust and the general discussion forum, you’ll find threads about why it is fine to take beta-interferon and LDN together.
For me, it helps with my bladder function. I had an overactive bladder, with some urinary retention and urgency. LDN has fixed all these problems and I realised it was working within a week.
For the first time since 1993, I slept through the night without having to get up and pee.
LDN has made my joints feel looser, but not a great deal.
I feel happier on LDN.
I take 4.5 mg per night and this dose works for me. Lower doses make my spasticity worse.
In my case, I didn’t find that it slowed the relapse rate and I don’t have progressive MS, so I can’t comment on that.
Now, I live in northwest Spain and in Spain, LDN is unknown. I had a long chat with Linda Elsegood and she recommended reading the Spanish forums and I discovered how to obtain LDN in Spain. If you live in Spain and want to know how, please pm me.
LDN is worth a try. There are people who haven’t had a great experience with it and I hope they and those who’ve had a great result post on this thread.