Hi I saw a specialist yesterday and we decided Tysabri isn’t working for me. He thought i should go on fungilimod (?) but i think the risks are too similar to Ty. I’ve been reading a lot about LDN and know that people are using it in this country. I mentioned it to the specialist but he had never heard of it!!?! Then he said it wasn’t a disease modifying drug and that i could do it but that i need to be on something that will control the MS at the same time. I’m confused! Does anyone have experience with LDN? Has it worked for you and are you on anything else at the same time?
l have had SPMS for 32 yrs. So no dmd’s for me. Have been taking LDN for 6yrs. lt is not a treatment or cure - but it does make a big difference to me as it boosts your endorphins. Gives you a feel good factor. Makes me feel more positive and more able to get on with life and cope with disabilities.
l would not be without it. And my MS has not progressed since l started on it. Don’t expect instant miracles - give it a fair chance.