Hi Dantheman here new to the group. Had MS now for 12 years. Following the OvercomingMultiplesclerosis plan and taking Low Doses Naltraxone. How are we all?
1 Like
Hi Dan, happy to greet you.
How is LDN helping you? I tried it some years ago.It had very short benefit, so I stopped it.
I’ve had PPMS 25 years…very dependent on carers and hubby.
Very much helped by my best mate Jesus.
Boudsx
Welcome. It’s always interesting to hear of people’s different paths. I’ve been thinking about trying LDN, but am hesitant to add yet another medication to the mix without being more sure of the benefits. You find it helps, I assume? And what with?
Did someone mention ldn?
This pretty ancient thread is also probably the most recent.
LDN.Pros/Cons. Post your experiences here to help others. - Everyday living - MS Society UK | Forum
That’s very helpful, thanks. I wonder how it mixes with Tysabri - the link doesn’t actually list which DMDs are OK, or maybe it implies they all are. I suppose I’ll just have to ask the neurologist (no MS nurse ATM), but it might be quite a while before I see him. The other thing that makes me hesitate is asking myself how easy LDN is to come off. I’ve had my share of medications for which I should have asked myself that question a little earlier. One’s system does quite quickly become habituated to things (that’s what systems do) and that can cause problems down the line with all sorts of meds that make us feel better at the time but can be a nightmare to come off.
1 Like
The only drugs you can’t take with ldn are opioids, so DMD’s are fine.
No problem with just stopping ldn, as it is not addictive.
If you do intend try the drug, it’s best to start with a low dose of liquid ldn (from Dickson Chemist), because you can increase the amount gradually that way.
The Q&A at the ldn research trust site should answer any questions you may have.
Of course, I am happy to help if I can.
1 Like
Thank you.
Hi PBMS
Pleased to hear that Jesus is very much with you and he always will be.
I would say that LDN is not for everyone and can take some time for it to work. Even heard it be said it can take up to a year to take effect and obviously we live in a world that wants everything now not in twelve months!
I would always suggest that no matter how long you have had MS is that you always keep taking Vitamin D3 and other relevant vitamins and food sources.
I personally follow the OvercomingMultiplesclerosisplan and the ‘Eat Right 4 Your Type’ book by Peter D’Adamo.
Praise be to the Lord
1 Like
Hi Alison
My Mother who has MS introduced me to LDN as she has been taking it now for 20 odd years. In her words she said it ‘saved her life’. So with that endorsement I eight years ago managed to get my doctor to let me try it to. I started on 1ml a night and now take 3ml nightly. It has been equally a life saver for me and meant up to now no need for DMD’s. Side effects are a feeling of drowsiness at night time. Which actually is perfect for me to help me get off to sleep easier. Also occasional feeling of nausea.
I know when I don’t take it I can feel a lot more of the sensory issues and cognitive skills become a little scatty.
Note I also follow the OvercomingMultiplesclerosis plan and ‘Eat Right 4 Your Type’ book by Peter D’Adamo.
1 Like
Hi Whammel
Good shout on your reply. Would also suggest asking Doctor and or Neurologist if they will prescribe LDN. Some will and some won’t it really is the luck of the draw with who your Doctor or Neurologist is and what information they have on LDN.