I have googled the hell out of this (!!) but no luck.
I have, as one d***head neuro put it years ago, Rapidly Evolving Severe RRMS. I have been on Tysabri from the phase iii trials (6 years ish). I havent relapsed in all this time and have ‘plateaued’. Which is all good but due to previous ‘attacks’ I have plateaued at a fairly poor state.
My balanced is very poor, legs very stiff and i’m very fatigued?
On top of tysabri I take 150mg per day pregablin and 300mg per day gabapentin (both for stiffness) and citilopram for anxiety/depression.
I would like anyones opinion on my position which I’m going to put to my neuro next tysabri infusion. “Can I ditch (over time obviiously) Pregab and gabapen and my anti depressant for LDN??”
Have I read too many websites??
Any thoughts / experiences or opinions are very welcome.