Forum

LDN pack to GP

Hi all

Have been this morning to see my GP and take her the LDN pack for GPs. She seemed very amenable to the idea of it. She had never heard of it before, nor did she know the difference between PPMS and RRMS, which is rather staggering!

Anyway, she is going to read it and get back to me. I’m worried that she will ask the advice of other GPs in the practice about what to do. They may then advise her not to prescribe it. I’m hoping that that won’t be the case though.

Teresa xx

Hi Theresa

Hope you dont mind me butting in but just want to share my experience. My surgery has 4 partners. 3 of which are willing to prescribe me LDN on the NHS but until the 4th agrees (or retires!) then as a TEAM it wont happen. I have been taking LDN since 2007 via the E-med route with my regular GP fully aware of its benefits for me and hes spoken with the pharmacist responsible for the local buget etc etc. Just waiting on Dr no.4...................

It has already been passed for 2 other patients (tho not my surgery) in the region-one for MS and one for arthritis. Both friends of mine-am sure you can work out how they learned re LDN! LOL.

I think its understandable the GP's require/desire the support of their colleagues. I put it in writing once a year to ask the team for LDN and this allows my own GP to raise the issue again..................

One day.......................... happy2

Ellie x

It's always worth pointing out to your GP that you can send the script to Dicksons Chemist in Glasgow which is so much cheaper than your local chemist, who will have to do a special order with a company that charges over £200 for a months supply. Dicksons charge is around £38 for a months supply. GP s love saving money, LDN is a very cheap drug as long as Dicksons fill the script. That helped my GP to say yes. Good luck,xxjo

Thats unbelievable Ellie, hope he retires soon and you get someone else more forward thinking!

I think that detail is in the GP pack Broushka, at least I hope it is. Thanks anyway.

Teresa xx

I've been on LDN for 3 months now and was just wondering what other peoples experiences were, i don't feel much difference to be honest, i'm still pretty mobile but have the usual pains and aches etc.

Thanks Mhairi, keeping everything crossed!

Teresa xx

Last week l had an appointment with the Consultant Neuro - he asked me if l was still doing well with the Sativex - and amitriptyline - l said l also take LDN - [which should have been on his notes]  He said 'LD what!' - never heard of it. l was so exasperated l did not say anymore. Well l was in there- about 3mins - after waiting outside for 1 1/2 hrs. So it will probably be 18months before l get to see him again. Can't wait.

Unbelievable Frances - do they do anything to stay in touch with what is going on around them?

Teresa xx

Hi

 

I have been taking ldn for a week now. My GP wouldnt prescribe it unless my Neuro said it was ok, which he did. Maybe you should go that route?

Good luck

 

Steve

My GP was willing and the consultant (to whom he wrote) was willing but the Primary Care Trust was not.  Without their say so the GP would not write a prescription on the NHS so I went the E med route.

Had to stop taking it due to extreme dizziness but I’m thinking about having another go.

 

Jane

What dose were you taking Jane? It might be worth reducing the amount and see if the symptom improves.

[quote=“stevie”]

Hi

I have been taking ldn for a week now. My GP wouldnt prescribe it unless my Neuro said it was ok, which he did. Maybe you should go that route?

Good luck

Steve

[/quote] I’m afraid that my Neuro is not at all keen on me taking LDN, so if the GP asks for his approval I won’t get it via the NHS. Teresa xx