firstly, thanks for reading this. I’m writing because I’m literally stuck with what to do and would like some advice.
my symptoms first started two years ago with blurred and double vision. I later went to an optician who said my eyesight was fine - didn’t need glasses but I had the acuity of a 60 year old (I’m 24 now so was 22 then). I then started waking up with pins and needles in my legs and arms - different each time, and sometimes my limb would be completely numb to the point where I had no control over it for about 10 minutes. I then started getting pins and needles in my hands and arms during the day, and also down the side of my face. At the same time, I was still experiencing double vision and was also sleeping 10 hours at night and 5 hours during the day. At certain times my family thought I was drunk because I was staggering around and slurring my speech. Long story short, I had an emergency cat scan and Mri which showed no lesions, but that I had a malformation in my cerebellum. The neuro thought this could have been something I was born with so left it. After about 4-5 months, my symptoms disappeared except from my eyes, of which are still extremely sensitive to light and I still have trouble focusing them/double vision.
after two years, my symptoms reappeared in June this year. It started with me waking with pins and needles in my hands, and completely numb hands too that I couldn’t move. Between June and now I have experienced the following - pins and needles/ numbness in my limbs both at night and during the day. Double vision / trouble focusing eyes. Dizziness / lightheaded - feeling like I could fall down when I’m walking. Trouble walking down stairs without gripping the sidebar. Shooting pains in my right eye. I also went for a chest x Ray because for about 2 weeks I felt like I was wearing a corset around my chest. This came back clear. The past month I have been exhausted. I had to take last week off work because I literally couldn’t stay awake.
I’ve had my blood done - all clear. Docs say my eyes are healthy so don’t understand why they cause me so much bother.
ive been referred back to the neurologist but where I live, this is currently a 7 month waiting list.
Ive fairly convinced myself that I have ms and my symptoms this year are a relapse. Does this sound like MS to anyone else? I really feel like my doctor thinks I’m making it up. He gets me to do things like walk from one side of the room to the other which I can do - but add some coffee tables and doors in there and I will walk into them! My spatial awareness is horrendous - I’m so clumsy and always banging into things.
please can anyone advise their thoughts of my symptoms??