I wonder if any of you might know anyone with MS ( any type although mine is secondary progressive ) who is on the cancer drug Kaytruda. It’s an autoimmune drug that destroys the skin of the tumour so that the body can then fight the actual tumour. It has had amazing results, so I’m keeping all extremities well and truly crossed as I’ve had 2 courses of chemo and a six week course of Radio therapy and an operation, none of which got rid of my tumours, so this is my last option!
It seems there was nobody on the trials for the drug that had MS. I’m getting a whole host of symptoms as side effects that are, to me MS symptoms, although my oncologist says they are not…I nearly said I’ve had this wretched disease since I was fourteen, I think I know the symptoms! However I quickly came to the conclusion that you don’t argue with a guy who has your life in his hands!!!
My oncologist thinks I maybe the first person( with MS) in this country to have it but it’s been more widely used in America, I would simply like to know if someone else with MS is having it and are they having such extreme side effects. The infusion is given every three weeks but the side effects are putting me to bed for a couple of weeks between each infusion.
I don’t usually post on Everyday Living but on this occasion I think I might get a wider audience. Thanks for reading.
Take Care everyone,