Ok so this is the first time I have seen my Nuro since Septemeber and since I was let out of hospital.
I was actually quite suprised she was really nice to me. I let my wife do the talking as me trying to explain I forget enough as it is.
I have really bad reflexs which hasnt changed and my toes dont go up or down on the physical which caused conspiracy last time, My twitching is at a minimum but my problems have leveled out now so I am continuely crap not up and down.
She told me to look up CFS and has given me some pills to help with fatigue, ill let you know what they are when I pick them up later, All I know is it begins with A and I can take them after 2 pm. (i think they are a high dose of redbull really)
She also told me that we will get to the bottom of this as we both explained its very hard and its not like we can join support groups for help when we dont know what group to join, she was understanding as could be for a Nuro that probably sees this alot. I am not her typical case. I also explained about my counciling and how its not related, she believe my bouncy legs are due to stress but there is definately something going on for me and is putting it to ongoing symptoms of inflammation until we know more.
So the outcome, I will be needing another MRI, I am going back down the hospital later for lots of blood tests. (I came home as didnt want to wait 2 hours!)
B12, ESR, HBA1, Liver function Test, Serum Electrophresis, TFT1 Suspected Thyroid Diesease, XTFT Thyroid Function Test, CRP C Reactive Protein, FBC Full blood count, Immunoglobulins, LDH, Folate, Urea & Electrolytes, ACA Anti Cardiolipin, TPO Thyroid Antibodies, ANA. (should be fun, as long as I am left with enough blood to get home again)
And she also signed a form to allow me to scuba dive, I havent done this since it began, but with the stipulation I dont reach depths that will cause decompression. I wont be able ot jump in but as I am already qualified it means I can put the kit on in the pool.!! finaly something to look forward to.
I feel good something is happening but bad knowing it will still be ongoing for months but its all possitive really, she wants to help, she can see I am struggling and is redoing all the test to compare, I cant complain.
So there you have it.