Hi Freckles, I’m from Staffordshire. I have been quite lucky with my nurse and Neurologist up to now. My neurologist is an MS specialist at the Queen Elizabeth hospital in Birmingham. It’s nice talking to people who actually kind of know what I’m talking about!! Debs xx
Mine is prof ziechek seen him once very good Awaiting to see him again to get results of tests and poss DX but never get answer or reply from his sec So annoying Gray
I had problem with his secretary Gray, but in the end I thought I’d just keep phoning, then she got back to me 
Luckily only had to try and get hold of her once.
Mel x
I see Prof Williams at the QE in Birmingham once a year and he seems to know his stuff so I’m quite happy with him. I have no MS nurse as my MS is fairly mild and see my fairly knowledgeable GP as and when I need to. No complaints so far!
[quote=“Tonka”] Hi, I live in north yorkshire. I have no access to a ms nurse. I’ve been told that if I need more support I would have to transfer to leeds or york. Any advice on which is the best between them? Lynn x [/quote] I am base in Huddersfield and have been referred to leeds seacroft. They seem to be much faster at dmd than local hospital. Bit of a pain to travel but really good care, good ms nurses and good neuro, don’t know bout York. Good luck xxxx might see you in clinic xxx
Hello Freckles, I actually do not live in the UK at all, I’m an American living in Belgium. Working for the U.S. army and NATO. I find it very hard to one GP as our docs move every two to three years, had the same Neuro since diagnosed in 2004, at time the language barrier is tough, she’s French and the only thing I can do inFrench is order good Belgium Beer…lol That is why I like this forum, I can understand about 99% of what is said here, still working on some sayings though… Lol Greg
I was diagnosed very quickly but the neuro consultant was a neuro-oncologist, all about the brain tumours. My presenting symptoms made a brain tumour the most likely diagnosis but once the CT scan, lumbar puncture and MRI results showed it was MS he seemed to completely lose interest. I wasn’t even offered steroids until several weeks after the diagnosis after I’d pestered him and his secretary almost daily! Once I was put on to the MS nurses list it’s been very good though. They’re very supportive and accessible, they saw me a few times early on when I had several relapses and started on Copaxone, now I see them every 6 months and the MS neuro specialist once a year. - Edinburgh
Hi there
Vit D is meant to help us isn’t it? Guess we are pretty stuffed in our part of the country. I did suggest to my neuro that I go and live abroad for half of the year but he didn’t think I would get that on the NHS can’t think why!
Freckles
Hi Greg
that must be really tough with the language barrier good job you can order a nice cool beer!
Best Wishes
Freckles
I’m in Devon as well, hello fellow Devonions x
I’m from Bristol and have an amazing team based at Frenchay Hospital. Available by phone or email.
Shazzie xx
if you’re in north yorkshire, might you be able to transfer to james cook univ. hospital in middlesbrough, it’s great hospital, i was there for 2 months in 2012 (not ms) and i’ve been with dr wolf since ms dx 10 years ago (god thats so long…) i can’t recommend him enough, while i haven’t really seen ms nurses for years, there were 2 of them way back whenever and they were both really nice.
wendy x
Hi Freckles
Like you I am in the (very wet!) Principality but I am in the Vale of Glamorgan so my care comes under Cardiff (at the Heath)
I am not Welsh (although apparently count as honarary (North) Walian because I am a Scouser). I am married to a Swansea boy - not a “Jack” though but a “Morriston Monkey”.
I was living in London when I was diagnosed so I have some experience of care in different parts of the Country.
London, for me, actually wasn’t that bad (after my first @&%£ of a neuro). Excellent GP, lovely consultant and very proactive MS nurse.
Cardiff has, for me been a bit of a mixed bag. Hands on care has been excellent. The only problem has been actually getting the care in the first place! Admin is not the strong point of the hospital here I have to say. (After my last consultant appointment, it took TWO MONTHS for her letter to be typed up by her secretary and sent to my GP!!! And that was with me contacting the secretary to remind her. As the letter was to arrange some medication that had to be done by the GP I was a bit miffed with that)
My lovely (and incredibly thorough) consultant has just gone on maternity leave and I don’t know if she is planning on returning so I am dreading her replacement. I am due a further MRI scan next week as I had a probable relapse in December so I think that I may be seeing him/her sometime.
I actually sometinmes with that I was under the care of your hospital - which I am presuming is Morriston. It has a great rep for neuro and, of couse, has strong links to Swansea Uni for MS research.
On a personal note, my lovely mother in law was a nurse in Morriston Hospital for years way back and his father was treated there for the terrible Parkinsons that killed him. My M-i-L (and my husband) did a lot of fundraising for the neuro dept there and, apparently, her work was responsible for equipment and also comfy chairs for the clinics.
So, every time you are sat waiting, your bum can thank my M-i-L! (Think the chairs might be more than a bit cream crackered now!)
Like Shazzie i’m under the team at Frenchay.
Thankfully, not too experienced with the service offered, but it appears to be pretty professional.