This is one for people who read the Barts MS Blogspot really. My (good) neurologist has referred me to a doctor who gives Cladribine to people with MS who have failed on the best licenced drugs. I didn’t know that doctors are not to prescribe unlicenced drugs if there is a licenced alternative.
I have been on Tysabri for four years. When I started on it, I could drive to the hospital, use one stick to help me walk the endless corridors to get to where I would have my infusion, drive home again and cook tea in the evening. Now I have to be driven to the hospital, use a scooter to get to the ward and then really struggle to even get into a car after the infusion. I don’t have enough strength in my arms and hands to prepare food any more. Has Tysabri made any difference to the course of my disease? I have no way of knowing. I really hope that I’m seen as a suitable candidate for Cladribine. I wish I’d asked for it before.