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its official most of us are mad

while waiting to see yet another neuro about brain seizure[she very kindly didnt turn up for clinic] I had to see some underling of my previous neuro, who to say the least is about has much use as a chocolate teapot the formentioned neuro was in the next room dictating notes on a patient when I heard him quote" yet another one to see a phyciatrist as none of her symptoms make sense, that 3 or 4 this week] now Im sorry if most of us arent text book cases, but should he be looking beyond the text book now, and take what we tell him as truth. this sad stubbling woman I am now isnt me, Ive raised 5 kids put 2 through uni, worked been "wonderwoman for many years, I really dont think Ive got through all that to lose my mind at 54

What a lovely story!  A neurologist who expects the world to be a tidy place is doomed to a life of disappointment.  Perhaps we can take some consolation from that?

Alison

x

hi lally

that is apalling angry

its no wonder there is so much talk on here about us thinking that we are going mad because according to him we really are going mad!

i dont understand how people can only  look on the surface for answers when the greater thing is one great big puzzle that could be put together somehow if only neuro's took a little time and wondered what and why these things happen. 

 when we have a new doctor at the surgery its like a breath of fresh air. because they are so inquisitive and desperate to find answers but after a few years they all lose that thirst for knowledge which is a shame.

 

i despair, i really do.

best wishes

mandy xxxx

 

 

What a sad life he leads when all he can see are cases in front of him: "things with symptoms", and not real people with real feelings and real problems.

I wonder if he cared once upon a time?

letdown

Karen x

I thought that being a doctor was a vocation - that they wanted to help people. Perhaps they are just there for their large salaries and to feel important. That,s how it seems sometimes anyway.

Teresa xx

That is terrible.....

 

I once had an MS specialist appointment. In the room was the MS specialist, a visiting neuro from New Zealand, MS nurse, clinic nurse, my husband and myself.

His registrar came in  and offered to take some of the list. He looked at the list and notes and said "Why do you always give me the raspberries" He was told someone had to deal with the raspberries.

I was so shocked I I couldn't stop thinking about it through my appointment. Not one of the professionals spoke up for those patients in the waiting room. Now I would say something, but back then I felt intimidated by neuro's.

I've always been wary what symptoms I mention to a neuro since.

Jacqui

x

This is utterly disgusting....I've recently changed my Doctor...as he gave me the impression that he thought I was making it all up...and it was all in my mind...or is the menopause!....I gave him a piece of my mind first though!

This is utterly disgusting....I've recently changed my Doctor...as he gave me the impression that he thought I was making it all up...and it was all in my mind...or is the menopause!....I gave him a piece of my mind first though!

it was the same man the dx me 2 years ago with ME no mri done just a few reflex tests, still got my dx of ME and syringomyelia

Maybe he should do a 'back to basics stint' to remind himself of his duties toward his patients.

AND

Even though he will have come across a lot of "the same" in the course of his duties....he should treat each patient as though they were his first ever

Patients give over a lot of 'self' to these people including trusting them with their lives....

They/we deservethe very best of what they have got on offer.

Maybe he should do a 'back to basics stint' to remind himself of his duties toward his patients.

AND

Even though he will have come across a lot of "the same" in the course of his duties....he should treat each patient as though they were his first ever

Patients give over a lot of 'self' to these people including trusting them with their lives....

They/we deserve the very best of what is on offer.

Hi

My first Neuro was unusual in that, although i behaved like a mad woman and my sister inlaw told me later I wasn’t making sense, the Neurologist suspected something medical and sent me for an MRI. I was diagnosed a few weeks later. So I would say a good MS Neurologist would know that when symptoms are weird and the person seems confused it doesn’t mean they’re mad. This Neurologist does not seem to know much about Neurological conditions.

Wendy

x

Brave doctor!

These letters sit for years in a patients notes. If he/she asks to see them....

fireworks will follow!!!