It's a long story....

New diagnosis and before diagnosis
1

Hi everyone,

Im a 30 year old male.

In august 24, i went to Specsavers due to having severe eye symptoms, which include, flashing colours, pain in eye, foggy eye, blurry vision and my leg was going weak/dead.

I was told by the Optician i had a ‘Blurred Disc’ in one eye, i was then sent off with an urgent referral for GP to send me to Neurology within 2 weeks.

I wasn’t sent to Neurology, i was given an appointment with Health Harmonie, who have advised me my nerve is ‘Twisted and Changed Shape’ due to my body shape.

I have had continuous symptoms now for about 6 months, my GP last week did a neuro exam and found.

‘Nystagmus on Horizontal Gaze’
‘Weak Trapezium Muscles’

She’s asked for advice from the neuro team at my local hospital, and for me to have a MRI within 2 weeks as she’s concerned.

I have had a phone call today, from the neuro registrar who’s advised that a letter has been sent to my GP explaining that i do not to see the team or have a MRI.

As you can imagine i am perplexed by all this, and quite frankly scared.

Can anyone advise me as to what to do next?

2

That does sound odd and no wonder you’re perplexed. Nothing for it but to consult the GP on next steps, I’m afraid.

3

Just had a chat to my GP who has advised the neurologist believe the symptoms are because of a Migraine.

At a loss as she completely disagrees with them.

4

How did Health Harmonie come to the conclusion that your nerve was twisted and changed shape?

5

Hi there, has anyone said anything about your weak leg?

6

I’m a bit mystified as to why you weren’t referred to Neurology as the optician originally stated.

Are you having any other issues?
Jot them all down, go back to your GP and ask for a referral to see a neurologist. I wonder whether the Neuro registrar is even aware of your leg issue….