I’ve already messaged my neurologist about this but I wanted to hear your experiences.
Is mild hand numbness (2-3 days so far for me) always a sign of a relapse? Or can it go away on its own without it being a relapse?
I’ve already messaged my neurologist about this but I wanted to hear your experiences.
Is mild hand numbness (2-3 days so far for me) always a sign of a relapse? Or can it go away on its own without it being a relapse?
I’ve never really been clear on what constitutes a relapse, so I don’t consider it one unless I have significant problems over a period of weeks.
I get random numbness in various parts of my body that lasts anywhere from a few minutes to several days. It’s always gone away eventually. Often, it’s just a sign that I need to rest that part of the body.
@NorasMom I’ve recently had to reduce my dose of Rebif since it was damaging my liver, until I can get my dimethyl fumarate (Tecfidera). That’s why I’m quite worried about my hand numbness (haven’t had this in a very long time)
It’s really difficult to know sometimes whether a new / repeated symptom is the start of a relapse. Hand numbness could just be a mild ‘there for a couple of days’ thing. Or might be a relapse. Since you’ve recently had to stop Rebif, there’s a possibility that it is an early sign of a relapse.
Do you have an MS nurse who you can ask for advice? If I were you I’d get hold of someone to talk about it soon. If it is a relapse, depending on how bad it gets you could get some steroids.
Personally, I’ve tended to only take high dose steroids for a bad ‘motor’ type relapse; ie one that affects eyesight (optic neuritis) or mobility. Something that’s sensory could be a bit of overkill. Given that steroids don’t alter the outcome of a relapse, they just shorten the length of time the relapse lasts. So probably best to tough it out, for a few days at least until you know what’s going to happen with it.
But talk to an MS nurse if you can.
Sue
Hi Sue, I’ve had the numbness for almost 2 weeks now. At the beginning, the numbness was increasing but then it just stopped increasing, it hasn’t gone away yet though. I spoke to a doctor and she said it doesn’t appear to be a relapse (I hope).
Just speaking about my own experience, I had numbness specifically in my right hand and only in my fourth finger and pinkie, it lasted just over a week and I’d never experienced any right sided numbness at all. Unfortunately new lesions were shown in my most recent MRI which would indicate that for me it was a relapse. It was combined with extreme fatigue, muddled, forgotten words and fast heart rate.
It’s been just over 2 weeks now and the numbness is still there, it isn’t in a new place, my left hand has been the hand which was always affected.
I will probably go see my doctor this week