Like you, I can’t really tell. I’ve been less than impressed with some of my friends (but NOT intimate friends) who haven’t seemed to make the slightest effort to find out anything about it. I couldn’t help thinking that if the roles were reversed, I’d be researching everything - wanting to understand as much as I could.
I don’t think it’s necessarily anything as cynical as he’s not bothered, because he doesn’t expect to be around for long. But it might indicate he’s just not that interested in other people’s problems.
Then again, the volume of information out there can be quite daunting, and the disease is so variable that a lot of things he reads might not even apply to you, so perhaps he’s just being practical, by saying: “Tell me yourself, if it’s important!”?
On the whole, though, I’ve had more confidence in friends who tried to find out something. I can’t really imagine a friend telling me she had something serious, and NOT getting straight on Wiki about it. Then again, some of my friends never use the internet for anything, so perhaps it wouldn’t even occur to them to look it up?