I have had M.S in excess of 15 years. I needed a pacemaker 18 months ago, because Intravenous Steroids caused my heart to stop and have a pulse in low twenties.
I have been in a relapse for 5 months- asked to see a neuro, couldn’t cope anymore. Cardiologist said no reason I cant have steroids and that is one of the reasons I had a pacemaker so I could continue on steroids if needed.
The top consultant neurologist - (whom I have never seen before) advised he hasn’t given any steroids in over 10 years. He was a man in his fifties and said quote unquote - you probably think I am a WANKER… (couldn’t believe what he was saying) I said I wouldn’t use that language Im educated.
He then went on to say, there is no evidence between oral and iv- I begged to differ advising oral, never worked and iv did- he then said well I will offer you a PLACEBO IV.
I advised he was insulting and wasting my time. He said he doesn’t believe I am in a relapse and in fact my m.s is just worse. He then said I will write to your cardiologist and ask if we can have an mri- which will show if you have had a relapse.
However if I am allowed an mri because of pacemaker - this will only show the start of a relapse in the last 3 months- so im thinking this wont show anything- what is the point.
In addition I said what about another form of scan such as a cat scan - he said YOU DO TALK SOME TOSH- DONT GIVE UP YOUR DAY JOB!! I said I am trying to think outside the box and do everything to help myself.
He then went onto say in these words " I am not a doctor who BULL SHITS" and I said I am a patient who doesn’t do that either.
He said I will see you next week and discuss further- I said Im not sure if you are aware, people with Multiple Sclerosis are affected with stress and it impedes greatly on there health!
Where to go from here- there is no one above him- the complaints team are about as useful as a chocolate tea pot - could go to a different county- a two hour drive away - why should I when I clearly am not the one whom needs to be taught manners.