A few weeks ago I went to the hospital because I thought I was having a relapse, they confirmed it and gave me 5 days of steroid tablets.
Yesterday I had my annual check up with my neuro (a new one as my old one left). As it was the first time I’d met him, he went though my full history, right up to this latest relapse. Cutting a long story short…he told me that the last 7 relapses I’ve had, haven’t been relapses at all and there is no point in giving me steroids at these times! He said that they are flare ups from previous damage done and it could be triggered by heat, infection, depression, stress and something else I can’t remember. After some more discussion he decided that I was depressed, I said I wasn’t, he said ‘I’ll leave that one with you but write to your GP so you can discuss it with him if you think you need to’. He also said that the wobbles I’m having at the moment are a habbit and nothing to do with MS, because I wobbled when I stood up or changed direction and when I was standing and closed my eyes but when he distracted me with other tasks (touch you nose, touch my finger sort of stuff) I didn’t wobble. So when I’m thinking of something else it doesn’t happen, therefore it can’t be MS causing it, even though I said I wobble if I’m picking the kettle up, or slicing veg etc (so doing something else). He also thinks it’s a confidence issue, which could also be linked to depression!
I can sort of understand where he’s coming from with some of the things he said but I don’t understand how other doctors have been treating me with steroids for relapses, if they aren’t relapses. How can he decide that I’m depressed or stressed when I and the people close to me don’t think I am (I don’t tend to get stressed about anything and have a pretty possitive outlook on life).
What do you think? (hope it makes sence)