Feeling fed up with numb frozen toes, numb patches on legs and face and feel as weak as a kitten. I finished my steroids about 4 days ago. I’m still waiting for an emergency appointment to see a neurologist . That’s 2 weeks now. I was diagnosed with ms 10 years ago. I had a couple of bad years. Then I settled into that I could walk but I’d never be able to go walking all day again, scissors are complicated as are knives and forks. When I’m talking I can think of the word I want to say then another random word comes out instead. My bladder isn’t always playing for the same team. I’m just wondering if these numb toes new symptoms are just part of me now. I’ve never been offered dmd. Am I wasting the neurologists time
If you have been on steroids i take it you had a relapse? if thats the case i think it will take time for new symptoms to calm down.
I would rest up a bit and just wait until you see your neuro.
Keep healthy if you can eat well eat right it does help a little. are you RRMS or PPMS. find it odd your not on DMD if your RRMS and having relapses.
your not wasting neuro time, obviously if your on steroids you must have seen someone and need reassure do you not have an MS nurse? Forgive me but i think you would get more response if your not ANON not sure why its needed really thought the idea of ANON was if someone was talking about a more personal issue. sorry if i overstep but its good to see a name so one can earn a rapport better. No not earn, but make more of a personal connection well i know what i mean lol.
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I agree with CC.
If I see a real name, then I see a real person.
I am not criticising you for posting as Anonymous but the bonds forged on this forum are made easier when real names are used.
Now to answer your questions - attend the appointment with your neuro. Tell him/her what has been happening.
Ask about a DMD and good luck xx
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anon
go to the appt
make your comcerms clear-take a list to remi nd you
medical staff tend not to like lists but use it as a reminder for you.
ask about poss treatnemyt
el
Hi Anon,
Go and see a neuro and take your list. Neuro will refer you to a physio who can recommend exercises and OT Occupational Therapist, who can advise you on things to help with daily living.
Keep an MS diary to record appointments and outcomes, symptoms and anything you buy to help.
Please give yourself a name so we know who you are. As you can see we all have different MS society names then sometimes put our real names at the bottom of a message.
Take care
Jen