I am a 50 year old female who has been in good health all of my life. Four years ago, I had an incident where I experienced numbness and tingling on my face and down my left arm to my hand. I was advised to visit the ER for a CT scan to rule out a stroke. Everything was clear. I was then sent to a neurologist to have a MRI. The neurologist decided that I was having “silent migraines” and sent me on my way with some migraine meds. He never mentioned to me that white matter was noted on the MRI.
I discovered this later when I requested a copy of the report. Fast forward to this past February when I suffered a case of shingles. I found that the burning sensation stayed with me after the rash cleared up, but it is all over my body. Post hermetic neuralgia ruled out by my new neurologist because the pain is not exclusive the former rash area.
I had another MRI with contrast and new lesions were noted in the periventricular area. Impressions were that moderate white matter disease progression since last MRI. I also had all the blood work to rule out other diseases…Lupus, Lyme, B12, etc.
In addition to the constant burning sensations, I have also had muscle fatigue and pain in legs and feet, muscle spasms in hands, arms, and calves. My gait is fine. My vision is fine. The doctor has ordered another MRI for the first of December because I am too afraid to undergo a Lumbar Puncture. The diagnosis she has given me is “demyelinating disease of the central nervous system unspecified”.
I guess I’m look for others who had the same symptoms or the same diagnosis. I am also trying to figure out what all this means…is it all my imagination or is something happening here?