I’m hoping someone can advise me please?
7 years ago I started to get unwell and eventually I ended up with a diagnosis of ME.
A year ear later I became even more unwell with a really bad head, shooting pains and even more tired than I was! I ended up collapsing and being taken into hospital. The MRI showed I had some white matter hyper intensities and whilst demyelination was mentioned very briefly I was told some was quite normal and I went on my way.
Over the years I’ve had a number of random illness including vertigo, pain in my eye, pins and needles and fluctuating fatigue and have had so much time off work.
This April I started getting really dizzy, had a bad headache and visual disturbances. I then lost the feeling over part of the left side of my face. I worried about a stroke and took myself into a&e. I ended up getting admitted and eventually they decided it was most likely a migraine and told me to slow down and perhaps cut down my working hours and caffeine. I’ve not been to work since then or drunk caffeine - neither has helped. They booked me in for an MRI just to be sure anyway.
i have now developed trigeminal neuralgia which is, perhaps, the most painful thing I have ever come across. I also keep feeling like something is crawling over my arm. I still have fleeting numbness in my face. The most debilitating thing has to be the dizziness. It’s literally like someone flicks a switch in my head! I am also incredibly tired again.
ive found out the MRI showed an increase in the White matter hyper intensities which suggest a possibility of demyelination.
i have an appointment with the neurologist tomorrow and I’m terrified if im honest. Does anyone know the likelihood of getting a diagnosis and does it sound like it’s possibly Ms to you? I’ve been refusing to google but I know numbness is definitely a symptom as is demyelination if it is that.