In limbo...and scared with it.

Hello…

I would really appreciate the opportunity to share with others recent events. Since November 2011 I have experienced three epsiodes of strange neurological symptoms, which are as follows:

November 15th-21st - a pulling, tingling feeling on the left side of my mouth. A few days later the left side of my mouth dropped (as if I had had a stroke). I felt extremely tired during this time and suffered from bouts of vertigo. My G.P. diagnosed shingles (despite there being no rash).

April 12th-30th - I developed a stabbing pain in my left eye. It hurt whenever I blinked. It lasted a couple of days, along with bad vertigo. My G.P. diagnosed migraine.

October 17th-8th November-The pain in my left eye returned, alongside a sharp, stabbing pain down the left side of my face. Around my mouth felt numb. The next day, after waking, I couldn’t quite feel the floor with my feet. My legs felt heavy (as if I was walking through mud). My mum, who was staying with us at the time, said that I was walking funny. This lasted about an hour, whilst the facial symptoms continued, i.e. facial droop (lessening pain) and twitching of ledt side of mouth). The next morning the leg ‘thing’ happened again. Mouth symptoms continued for several days. On Friday 2nd November I got up and all sense of balance was gone. According to my mother-in-law I appeared ‘very drunk.’ Again this wore off as the morning progressed and then came the BIG ONE (Thursday 8th November)…After my son’s medical review (my son has severe special needs) I walked into town to catch the bus home. Half way through the journey I suddenlt felt very hot and dizzy. My feet began to tingle and I felt like I was in trouble. When I tried to get off the bus my legs felt really heavy again and I almsot fell off the bus. The bus had stopped in the middle of a country road, so I was left standing there with the whole world spinning. I tried to walk, but found that my legs just wouldn’t lift properly. I strange tingling feeling came into my left hand and started spreading up my forearm. I literally dragged myself across the road to a walll (with my left leg in particular dragging) and clung on for dear life! I simply clung on and sobbed. A kindly stranger came to my aid and carried me to his van. He then fetched my neighbour, who is a nurse to come and look after me. Within two hours I could walk again, but the tingling feeling lasted all day. Other symptoms during this time include losing my balance and falling against the window whilst talking on the phone; losing my balance when going to pick things up from the floor.

All symptoms have since disappeared apart from extreme tiredness, which seems to come on suddenly (this is sometimes accompanied by weakness in legs); occasional pins and needles in feet.

I am due to see a neurologist next week (private as it was a 9 months’ waiting list with the NHS!). I am very worried abiout what this might be. My G.P. seems to think that it is epilepsy as my son has the condition. He has also mentioned stress. He believes it is not MS as I have not lost vision at any point. I am not so sure. I think there are a number of things that it could be, MS being one of them. Oh, I just feel so confused and anxious. Any pearls of wisdom…

Thank you.

I would dearly love to run a compulsory refresher course for all GPs in the UK - the purpose being to knock some of these stupid myths into touch; this one being about loss of vision. Clearly your GP doesn’t know that roughly 50% of people with MS experience optic neuritis during their lives, but that not all of these will experience loss of vision, even temporarily. In other words, most MSers do not ever experience loss of vision!

More importantly, could what you’ve been experiencing be MS? I’m not a neuro, but I would guess no - this latest episode doesn’t sound very like MS as MS symptoms do not tend to come and go so rapidly.

There are lots of conditions that can cause transient / short-term symptoms though, e.g. migraine (and this can occur without an accompanying headache) or TIA (mini strokes). Many of these are controllable with meds.

Whatever it is, you are doing the right thing by seeing a neuro. Hopefully he/she will be able to work it out quite easily, but do be prepared for a bit of a long haul just in case - neurology is complicated because so many conditions share symptoms, but there is a lack of tests for them :frowning:

Good luck.

Karen x