Hi everyone, I collapsed again on wednesday and mum had to call an ambulance as she physically couldn’t move me! My legs has gone to jelly again, with numb feet. my mouth had dropped, I felt spacey and a new symptom-stuttering and slurring my speech. My hands had gone totally numb again and no grip at all.
My local hospital has yet again been pretty appalling!!! I’ve only seen one very nice doctor, who asked me to give myself a drink and it ended up everywhere cos I just couldn’t grip it so it dropped. He asked if I’ve ever had a lumbar puncture before but said he should hand me over to neurologists for their advice. I saw the neurologist today, very briefly as he rushed in and could only spend a minimal few minutes with me as he had others to see and get back to Taunton. He was therefore very blaze’ and managed minimal examination and consultation. However my neuro exam I was told was abnormal and he thought I may have a neck problem causing my leg and arm problems as that’s what was suggested by my neuro signs. So he ordered an MRI of just my neck and told me I’m complex! Yet he then said he won’t c me again whilst I’m in the hospital and to see him in his clinic! (goodness knows when)! Also that the next step was definitely the Burden centre(some of u may have read my posts of the dreadful experience I had there and they r very psychiatric focused) as he didn’t know what else to do for me!!! So, I’m thinking I need to push for someone who does know what they can do for me and do other tests at a specialist centre-what do u all think?!
I’m sick and tired of being pushed from pillar to post and never getting anywhere. My relapses are becoming more and more frequent and I need some answers. I’m getting so upset and frustrated that no one is hearing my pleas!
Has anyone had similar experiences and what have u done over the years to get a diagnosis eventually?’
All ur help greatly received as always.
P.s. I’m still having all above symptoms except can move my arms a little easier, only able to type cos of my amazing touch screen phone-praise the lord for technology!!!