In bits this morning husband having a go again about me getting myself sorted out!! I feel so alone and cant cope, can only do my best and cant rush the nuro anymore… he keeps telling me to go back to my gp and in his next breath saying when am I going to get a job!! Not been working for a while now, husband more or less pushed me into a interview I didnt want coz he new the company… which I didnt get the job anyway. Think they coule tell I had health issue’s just by the look of me… What happened to in sickness and in health… I feel as if he doesn’t want to come to terms that I have issues and that I have some good days, but mostly bad. . He wont come to appointments with me, to busy with work and he said the money got to come from somewhere. Hes also asked me to claim some benefits. Dont know what to do, he’s un supportive and moans about the state of the house… doesn’t seem to be bothered about me… V x
Oh Vicks I wish I had the words to say to make you feel better. Things must be really hard at the minute. Have you got any close friends or a sister perhaps who could be a listening war or support you at appointments? X
Hello Vicks
This is a stressful time for you both. It might be a good idea for you both to go to the gp apointment.
You both need to try and sit down and talk to each other about things…your husband is obviously worried about finances.
Maybe if you both go to citizen advice and find out about help with benefits, could take some pressure off. You can’t look for a job if your not well enough…your husband needs to understand that.
Your gp can even arrange joint counselling for you both, if things get really bad.
Hope things work
Take care
Hi viks I feel for you having a hubby that’s every bit my rock. Have u sat Down and explained exactly hiw your feeling ? Good luck X
Hi, back in 1999 when my mobility was causing problems, I remember me catching my foot on newspaper, my hubby had put down for the dog at night. As I walked over it, I pulled it up and he was annoyed and snapped, Why cant you walk over the paper without making a mess of it?
I was both upset and annoyed at his words and so I really snapped back, saying, I dont know. Ring the MS society up and ask them!
We both knew I was possibly facing a diagnosis of PPMS. It was a horrible time and I didnt know if he would be able to support me at that time. I also felt alone and very frightened.
The thought of a serious illness must`ve scared him too, but his words and actions didnt make me feel like I could rely on him for support. Later years have proved I was wrong and he has looked after me well. But it hasnt been easy and I know how you feel.
From what you`ve said about your condition, I am sure you will be able to claim both ESA and PIP.
Hang on in there hun. Accept help if it is offered from family and friends.
luv Pollx
Hi Viks Im sorry to hear your hubby is not being very supportive and can understand how your feeling, ive n ot been Dx at the moment and already my partner is say that he feel s more like my carer than my partner, i know how i feel by his remarks so think know how you feel, the guys in here are very supportive soi keep chatting, good luck . Mac
I have the same problem since being diagnosed with arthritis early last year. I was really really bad back then with the pain that I had to use a stick and could barely do the housework. I have three kids to look after and I am a stay at home mum. My hubby has been very unsupportive but I wonder if its through the shock of diagnosis and the fact that its changed our lives? I get good and bad days now but I mostly struggle along. Now I am awaiting an mri to check whats up with my back pains and I am worried I have MS too Chin up hun, I know exactly where you are coming from xxx
HI VICKS,
MY HEART REALLY DOES GO OUT TO YOU. IT SOUNDS LIKE YOU’RE HAVING A TRULY NIGHTMARISH TIME, NOT HELPED BY, (AND PLEASE, YOU MUST EXCUSE ME FOR BEING SO BLUNT) A TOTALLY UNSUPPORTIVE HUSBAND.
I GET THE IMPRESSION THAT YOUR HUSBAND IS IN DENIAL ABOUT YOUR CONDITION AND UNFORTUNATELY THIS IS NOT AN UNUSUAL THING. I’M BLESSED THAT MY HUSBAND HAS BEEN A TOWER OF STRENGTH ALL THE WAY THROUGH THIS BUT I HAVE ENCOUNTERED PEOPLE (FRIENDS AND FAMILY MEMBERS) ASKING AFTER MY CONDITION AND THEN ASKING WHEN I’LL BE ABLE TO GO BACK TO WORK AS (AND I’VE BEEN TOLD THIS ON MORE THAN ONE OCCASSION) THERE ISN’T ANYTHING REALLY PHYSICALLY WRONG WITH YOU.
THERE IS SO MUCH SUPPORT AVAILABLE FOR YOU BUT ALSO FOR YOUR HUSBAND AND I REALLY HOPE THAT YOU CAN CONVINCE HIM TO MAN UP AND SUPPORT YOU IN THIS.
HOPE TO CHAT AGAIN.
SARA