Iv just been reading some of the posts on here and thought I’d write one, well I am 22 years old, and it all started in april this year, but it took them until august to even get me in with a ms specialist, at first when I was waiting to be diagnosed I was looking up all sorts cancer, brain tumours etc. I got told just a couple of weeks ago that they think it is primary progressive ms and I really dont know what to do I have never been so scared in all my life I push every one away from me cause I cant deal with it. I am in so much pain and none of the medication that I am on helps, I can hardly walk I can hardly do anything for myself. I am so scared as I dont know what the future holds for me or how fast it will progress, all I know is that I cant cope any longer feeling like this. I have told my GP this a million times but she just doesnt seem interested in helping. I amdue to get married on 26th nov this year and I can hardly walk and alot of the people that are coming dont know that I have MS so I am dreading them asking whats wrong and I am dreading walking up the aisle when it will be all eyes on me. It is so hard to come to terms with everything.
Hope to hear from you guys soon