Hi Christine, sounds like you’ve been really going through the mill the last few weeks (I think I replied to another posting of yours).
For me it looks like PPMS but only time will tell, I was only told that diagnosis at the beginning of July so I can imagine how tough/frightening you’re both finding it at the moment (I think I’ve managed to go for 5 days maximum with no tears, not just for myself but I get the right old wobbles when people I know and love are cut up about it).
As it’s such a recent thing for me, I certainly can’t speak with anything other than my limited knowledge on the subject.
There’s no cure for MS regardless, so I think with PPMS, the main difference is that we won’t simply bounce back from our symptoms at some point, with or without steroids etc. Likewise because we will deteriorate at a pace, hopefully we won’t get the same sudden onset of symptoms that someone with RRMS might have (in that respect, it’s certainly something I can do without!).
I think the thing we have to be hopeful for, is that it’s not too aggressive, if it is agressive it just means life will get difficult a lot quicker.
I feel terrible as I’m not painting a very good picture BUT it’s probably not as scary as when you first hear that you have MS. Whilst there are no meds for it, there’s still complimentary treatments (accupuncture for example) and there are still things we can have that make life more comfortable, for example - I take amitriptyline at night to help me sleep, I believe it also helps with nerve pain. I’m also waiting for a neuro rehabilitation appointment to see what can be done about foot-drop (there’s devices for it etc). I’m also taking LDN (low dose naltrexone) which I’ve heard lots of good things about on here so it was worth investigating. My point is, there’s still some help and your GP is probably a good starting place, my surgery have been brilliant to me.
Take care Christine, you’re probably both going to need a little time to digest everything. I’m pretty sure my husband is depressed at the moment too, so first hand I know you’re having to bear the load too hugs
Right, I’m gonna stop there as I could waffle on a bit too much!