When i was young i was fit and healthy, gradually things crept up on me symtoms started after i had my 3rd child, gradually getting worse with each flair up
I used to ski, swim ice skate, ride horses, hill walk and if there was enough time left work(ha,ha) going to discos with friends was another thing ,in all i had a full and enjoyable life.
Kids came along and slowly life changed , i became a mum and still worked but then illness crept up slowly but surely stealing bits of my body, and with it life as i knew it.
Now my kids are grown with kids of their own, and life moves on EXEPT mine im stuck with a body thats shot to pieces stareing at the same 4 walls every day ,i dont blame my kids they have there own lives to live, but god i miss ME.where do i go from here? whats going to happen to me now?
Winter is upon us and the days are long and dark and lonley,with only the tv, and phone for company!
I know im feeling sorry formyself at the moment but ive not seen a soul since last Tuesday, its ok talking on the phone, but its not the same as face to face contact.
Theres no clubs around here to go to no day centers and the local library has been closed down,so what do i do now?.
Contact the local stables (horse riding). We have one local to us which does assisted riding times and trap riding. Re-awaken that love? Ours is an indoor riding centre but am sure there must be other centres around the country. Personally, my involvement was as an assistant with teenagers with hemi-plegia back in the 90s but I hear they are still running. I do not ride as prefer cycles!
My MS started 30yrs ago - when l first became pregnant. l am now 65 - and l do feel that l have been robbed of the person l really am. Like you - l was extremely fit - worked hard - walked my dogs - rode my horses and could dance all night. l have never drunk/smoked - healthy diet. So l know that l have never done anything to compromise my health. l now have more problems - caused by my MS. Because l have tried hard to keep fit and mobile - by dragging myself along l have now worn out my ‘good leg’ and need hip/knee replacement. l did manage to keep riding up until 18months ago - but my dodgy good leg causes me so much pain and l am just not safe to ride. l am hoping to have hip replacement soon and then perhaps l might be getting back in the saddle again. l still go out every day - whatever the weather - on my Tramper scooter- taking my dogs for a good run over the fields.
l use a rollator to get about the house/garden - this l find is much safer then a stick as l can sit down on it if necessary - and the basket part is useful for carrying things. And when you let go of it -it does not go clattering to the floor.
Like you - there are no therapy centres near me. But then do l want to be with folk in the same or worse state as me - no l don’t.
Luckilly, l can still drive - have an automatic car. Having lots of ‘livestock’, relying on me, does drive me into action - dogs need letting up the garden - and cats all need feeding. Ducks/hens - need letting out. l even have a pet ferret that needs its house cleaned out everyday. Friends - who ride - do take it in turns to feed and muckout the horses.
l am not on any dmd’s as l have SPMS - but l do take LDN - which has made such a difference to my life. My biggest regret - is that my daughter did not get to know her mum as she was before ms.
l never mention my ms problems to anyone - they can see how l struggle to get about and know not to ask me how l am - as l always reply that l am ‘fine’. Whats the point in going over all your problems all the time - folk soon get fed up with that.
Have you thought of getting a scooter - as it does broaden your horizons. And do look to see if there is a ‘Riding for Disabled’ stables near you. l am sure they would arrange transport for you -giving you the opportunity to be with horses again- and perhaps riding or driving them. The RDA are well equipped to work with lots of different disabilities - whereas most folk do not understand MS - we would get more help if we had a leg and arm in plaster!!
I know and share how you feel. Probably not what you want to hear. I am feeling very sorry for myself and I REALLY miss my life. I cannot walk, stand or even leave the house without my OH an they work 7-6pm 5 days a week. I am not depressed but I know I will leave this earth on my terms. Sorry I didn’t cheer you up
Hi, so sorry you are feeling so down. You definitely need human contact. Try looking up to see what local groups of any sort are available in your area. It takes courage to pick up the phone but the results can be so rewarding. There are lots of groups that are still accessible for people with MS e.g. specialist exercise groups, singing groups, evening classes etc etc. You need to find a new hobby and introduce yourself to a wider circle of friends. Get yourself a scooter. Explain how you are feeling to your GP or OT, maybe they can help.
Thanks all for replying i have a scooter the local shops are at least 20 mins away up steep hills and i do go there when i need some shopping.
I would love to get back to horse riding but dont know of any where around here that dose riding for the dissabled.
I was looking at my medication and have found that one of the pills i have been given for high blood pressure, has a side effect of deppression, i have been on this 1 for 3 weeks now, so i have made an appointment with gp to see if this has made me feel so down, i will let you all know what he says next week.
