Oh, that’s too true. Sadly. I’ve stopped being ‘fine’. When anyone asks ‘how are you?’ I normally reply, ‘generally crap, but these are what currently ruining my life …’ And when I don’t, people look patronisingly kindly at me, because I’m the ‘poor soul in a wheelchair’!
Nice poem, says it how it is. Let’s not pretend that MS or disability or fun, or something to come to terms with. MS is crap.
Thank you. I feel so much like that. Its so hard to put into words. Its worse when your not diagnosed so you don’t have a label yet. I hope you feel better soon xx
The only way to answer that question is honestly. Well today, i feel shit or whatever. So what if they are gobsmacked or shocked or taken aback. THATS NOT YOUR PROBLEM. Don’t lie. What’s the point in that? Better your family nd friends get to know how you feel from day 1.
sometimes if people ask how I am doing, I will reply “do you really want to know?” If Yes I will tell them honestly, if No (or a pause) my answer is “as good as can be expected thanks”
Thank you! It’s so hard to put all the ms stuff in words if I’m asked if I’m ok without frightening people away. I guess you soon learn who wants to listen!
‘but you look so well’ people often say to me. But, as you said, they don’t see the real me, if only they could be in my body for just 5 minutes they would think it 5 minutes too long.
I’m fine too, that’s what I tell most people… really good poem. I find that if I try to explain how ppms makes me feel people say “get some cannabis oil, it cures cancer so it should help you” or they say “I know someone with ms and they are fine!!” People don’t understand the things they cant see and we probably didn’t before ms. Karen
I’m delighted that you shared your poem with us. It’s a brilliantly expressed piece and I’m always grateful when I read something I feel but haven’t found a way to articulate.
I’ve just re-read your poem Snowman. And I know I said straightaway that it’s great, actually it’s even better than I thought.
At first reading, I just thought ‘oh yeah, that’s how I feel’ but a second reading makes it seem even more poignant and utterly true. I truly think it’s a wonderful, evocative and meaningful poem.
I’m going to keep it for future reading and sharing with anyone who asks me ‘how are you?’
I’m truly touched by your words thank you. I’ve only recently started writing poetry this year and find it a huge escape from almost 30 years of ms and a great way to express how I’m feeling. To hear people’s comments is just fab.Thank you. I’m glad you can connect with the poem!