So this is the first time I have posted on the is site and it is actually the first time I have asked for advise or help at all on the subject of MS. So basically I have been diagnosed for almost 10 years now and suffer from a lot of the most common symptoms and some uncommon (too many to list!) but recently I have been feeling guilty about moaning if I am struggling. I try to live my life to the fullest of my capability and I am lucky my condition isn’t worse than it is, although sometimes that can be a cold comfort but for the most part I am a positive person. When asked how are you? I usually instinctively reply with: yeah I’m good how are you?! I don’t like to complain and I like to stay positive. But on the rare occasion I say: not so great, had a rough night last night. I seem to get ignored? Now I am not looking for sympathy however sometimes we all need someone to support and understand how we are feeling and what we are going through, but no one seems to ever acknowledge just how horrific I do feel. No one seems to understand and sometimes this makes me feel bitter when I always try to understand how my friends feel if they feel unwell. Sometimes I do think to myself that they would understand if I were in a wheelchair, which sounds horrific and I really don’t mean it to sound bad but people can’t physically see what is wrong with me and so I guess they struggle with understanding which is fine of course but not one person has turned around to me and asked about it at all, which I would always make a point of doing if it were my friend. This then makes me feel guilty about moaning about it and so I get stuck in a rut, and I’m guessing because people fairly hear me moan, they don’t know the daily struggles of what we have to go throug. So my question is does anyone else ever go through that feeling, or thought process? Is it normal? I hope it is but I just don’t know what to think anymore of how to deal with it. I am not the sort of person who would reel of a list of symptoms when asked if I am ok, so how do I deal with it??
Thanks in advance!