I’m having a really tough time at the moment and I am starting to dread going to bed. For some reason the pins and needles, tingling and numbness get worse within 2 minutes of me lying down. I spoke to the MS nurse and she suggested a memory foam pillow to support my neck, which I’ve ordered, but in the meantime I’m trying out various different positions.
My sleep is really affected and I wake up several times a night with ‘dead’ arms or legs (or both). The other night I woke to numb arms, legs and my chest and face started ‘buzzing’. It’s so scary and was only helped by walking around for a few minutes. Even then the numbness came back as soon as I lay down. I’m taking 20mg Amitriptyline at night, but even that doesn’t seem to knock me out as it used to, (although it makes it really hard to get up for work the next morning).
During the day the tingling is there, but much milder.
I’ve got another month before my first appointment with the MS neuro and I’d really appreciate any advice anyone can give me.