Id like some help

Hello, i was diagnosed in april. I have an appointment with the specialist in late june. I was off work fot a few weeks, amd went back gradually. I final got back notmal, felt comfortable and confident again at work. Then i had another relapse which has left me struggling to see. I feel alone and scared. I gurss i wanted to know how long people had their symptoms until they felt any sort of normal?

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Hi @BB93, firstly welcome. I guess what you want to hear may not be that simple. The question is how long is a piece of string. MS is such a broad beast, as you will see by reading through, as I have done, MS has many faces.

I wish I could give you a black and white answer but I can’t. My best advice is to read through the posts and to try and get an overview of how newly diagnosed and older timers (sorry) cope with both relapses and remission.

I personally have learnt so much, and have been able to look at my own situation more positively. Keep posting :blush:

I am so sorry to hear you are feeling this way my dear! Please know that you are not alone! @Rogue said it perfectly that MS really is not something we can narrow down. I have learned myself quite a lot and am still learning each day with what I experience. I guess it is reassuring that on this forum we know we are all in this great big unknown together followed with immense support and well wishes.

I know its easier said than done, but try not to let the stress of it all affect you. I’ve also started noticing minor issues with my vision that are sporadic. At this point I just tell myself this too shall pass.

sending loads of prayers and virtual hugs x
rida

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Hello,

almost impossible to answer your question as everyone’s MS is different and the same person will have different experiences. I can offer empathy as many people here understand how you feel. I can also describe some of my own experiences which may or may not help!
With RRMS I had numerous relapses ranging massively in severity and durations, so I learned to try and gage each new “normal” listen to my body to assess which things I can do something about and those that would be a waste of valuable energy struggling through. The really annoying thing for me is that being so variable, timings and strategies that worked before are not always going to be the same.
My ‘advice’ would be write down the questions you want the specialist to help with. Try to find out if there are drug options to reduce the frequency of relapses available. Sorry I can not offer anything more useful and I hope that others here will also offer what support they can.
Mick

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Thank you for your advice. I just feel so lost because i have no one to turn to when things like this happen. The specialist appointment feels so long away.

Well now you have lots of like minded friends to turn to. We may not have all the answers but we will do our best :blush: