Donna and Gemma
Welcome to specialist .
I can’t give you any definite answers - as you are going to find out very soon, the only answer you will get consistently is “everyone is different”
I was in your position at the beginning of June. The steroids take about 4 weeks to kick in so don’t expect immediate results. You will likely be climbing the walls with frustration, loneliness and feeling abandoned. I would suggest that you take this time to rest and let your body do what it needs to.
It takes blooming ages for the ms nurse and follow up appointments to kick in. You can fret about it but the nhs wheels turn slowly and afraid you just have to wait.
3 months later I have seen the ms nurse, had follow up with the non specialist neuro and been referred to the ms specialist neurologist. I have speeded things up by seeing him privately.
Guess my advice would be patience, rest, rely on your family and friends. Take any help they offer, dont let your pride get in the way. When the time is right, make sure you get referred to an ms specialist neurologist.
Be kind to yourselves and use the forum as a sounding board when you need to - everyone is friendly and welcoming.
MS Society and MS Trust are the best sources of reliable information.
Good luck, take it easy.