Today (well, yesterday now) I had my first neuro appointment after first going to see my GP 6 weeks ago with numb left half of my body and extreme weakness along with various other MS-like symptoms (double vision etc). I was sent for a CT scan which was clear so no brain tumour or stroke. I was then referred to a neuro as an emergency and have an appointrment for an MRI next month. After joining this forum for some advice/knowledge etc I thought that a first neuro appointment would be just one small step to finding out what is causing all these horrible symptoms.
So I went in with one A4 sheet of paper with my symptoms, when they started, how long they lasted and what symptoms I now have left. She did various tests, Babinski's reflex, Romberg test etc. I couldn't walk in a line toe-to-heel one foot in front of the other, lost my balance numberous times. She asked me about any other episodes like this. I said about the time the left half of my head went numb when having a filling but dentist said trapped nerve. She asked me how long it lasted and I said about 2 months. She nodded. I then mentioned that I had two severe bouts of Labyrinthitis about 2 years ago and she was very interested in this and asked details. She then asked if I had any questions. I told her that my GP had mentioned MS and was almost bowled over when she agreed! She said the Labyrinthitis was probably actually 2 MS attacks and probably the trapped nerve on having a filling. I then remembered having a weird skin infection when I had about 14 marble-sized lumps in my left armpit. She said it all ties in with lymph glands and imflammation of the nerves etc. She said that the MRI I have next moth will confirm MS! She hasn't ruled out anything else though?? I was only in her office for about ten/fifteen minutes.
When I mentioned MS I fully expected her to say something like "Oh no, nothing that serious!" She has made me an appointment to see her end of May (MRI is 18th May) and she said we can discuss results then and also treatment options! She sounded pretty sure. Why would a neuro scare someone like that if they weren't pretty convinced? But how does she know it isn't something that presents as MS? There are loads of symptoms that cause paresthesis and other MS-like symptoms.
I got outside and burst into tears!
All I can thuink about now is me being in a wheelchair and my children having to care for me instead of me caring for them!
I just was not ready for this in a milllion years. Everyone here seems to wait years for a DX and get told all sorts of different things and have all sorts of endless tests. I was really prepared to be going down that route of multiple tests and never-ending waits etc.
She did say that because I am recovering from this attack myself it is a good sign. A good sign of what?
What type of MS might I have? How will I find out ? I was too stunned to ask these questions at the time.