I really don’t know where to start and I’m guessing thats how a few of these posts start.
Around about this time last year I became very poorly on a train journey with severe pain inbetween my shoulder blades and ribs and to be honest I thought I was having a heart attack. Follow ups from the GP immediatly after getting off the train showed that there was no cardiac problems. However a catalogue of ill feelings started and to be honest haven’t really gone away. They go quiet but in a weird way I can feel them there under the surface as if to say waiting for them to flare up which they do from time to time.
The syptoms I experience are:
Involuntary and quite agressive Twitching legs and arms (almost fit like. Epilepsy has been ruled out)
Cramp and spasms in toes, feet, legs, torso,
Feeling of trickling cold running water under the skin,
Bladder irritability (feels like I have a urine inf without the burning sensation)
Blurred/slow vision in left eye which can cause me to be a bit wobbly sometimes
Left eye twitching
Aching teeth especially on the left
Herendous rib pain
I feel so heavy
Confusion and a difficulty in processing what people are saying to me
It has been a while since I felt all of these at once…prob about Jan time now…but…
Within the last 24 hours I’ve been suffering with a painful neck which hurts when it is bowed A LOT!
Lost control of bowel function (embarrased to say)
a numb type of pain in my left side of my face but it felt as though my face had dropped but I wasnt near a mirror to check and it only lasted about 10 seconds. I feel heavy, achy, lethargic, and pretty low in my mood (I have got quite a lot going on personally with friends serious illnesses so thats hardly suprising)
I’ve had a MRI last August which showed several foci but no evidence of de-mielination (excuse the spelling). I was then refered to a neuro that thought I may have epilepsy??? Basically he didn’t listen to a word I said and wanted to fit me into a box that quite frankly I was never going to fit into. I was refered to a Epilepsy expert that catagorially said that there was no evidence for epilepsy and he couldn’t really understand why I had been refered to him. Luckily he was a lovely Dr and has agreed to see me as a Neuro patient under the QE birmingham. He has ordered a lumbar puncture test for me which I have just been chasing up the appointement and…well…no where to be seen. Hopefully they will get back to me on Monday regards that now!
I don’t really know what I’m asking on here…I guess I want to know if my concerns are valid? Is it possible that I have MS even though the MRI suggested otherwise? Is there anything I can be doing for myself?
I feel like I’m loosing my mind. In a really weird way I question all of my symptoms and try to rationalise them or sometimes/a lot of the time I just question whether they happen at all. This vagueness and doubting is horrid!
I hate moaning and waffling with a vengeance, but this is how desperate I am!
Help me out of this limbo…please!
If you’ve read to the end of this post…congratulations…many of my family would have stopped reading after the 3rd line LOL
I really feel like I’m going bonkers!