Very long winded post but im hoping someone can help me. I currently have no feeling on the right side of my face with eye twitching and insanely distorted vision, this is day 3. Every month and a half for the past 5 months I have experienced a barrage of symptoms which has knocked me for 6.
It all began in high school at about age 14-16 where I began getting an awful tremor I couldn’t write or hold a pen to paper after numerous scans and tests they couldn’t find anything and diagnosed me with benign tremor.
Fast forward 2 years and I am sat in college when suddenly just like that my left side of my body paralyses. Cannot feel or move my leg im pretty much dragging it behind me. Go to A&E where they do scans, eye tests the lot. Conclusion… they have no idea !
Fast forward another 4 years I start to get extreme fatigue like nothing I’ve ever experienced in my life I cant wake in the mornings, emotional mood swings like nothing ive ever experienced, but thought nothing of it then suddenly bam I suddenly begin walking into doors, stammering my speech, brain fog the lot for around over a month. I go to my GP, just tiredness!
They check my blood levels, hormones in blood etc all normal.
A month later the tremor is back aggressively and uncontrollably and this time its not only my hands but my head too, it looks like im having a full on seizure half the time. I go back to my GP who refers me to neurology because I mention both my aunty and grandfather both have MS.
A month goes by tremor eases off still waiting for the Neurologist and URGENT MRI then as if by magic like clockwork here I am with no feeling to the right side of my face with an awful numbness/electric feeling in my legs. So back to my GP I go who sends me to A&E where they take me for the MRI of just my brain (with no dye) and nothing shows, no lesions, no scarring absolutely nothing! The DR (not a neurologist) says that because theres no lesions I don’t have MS and that theres nothing wrong with me!
I am honestly loosing my mind! I am exhausted, emotional and well and truly done. All that seems to happen is that I go around in circles and I dont know what to do. Is there something Im missing here? They haven’t done any nerve tests or anything they didnt even look at my spine. Im just utterly confused!!
Please if anyone has any advice or can help me in anyway! I am just about done and am fed up of feeling like this.