I’m lost and need help, if any advice can be given please.

Hello all,

I hope my keeping as good as you can with this illness or those caring for someone with it.

I am really at the end of my tether in my rights to my GDPR and getting access to information the hospital is witholding on me, is causing me serious health issues from the stress after a year now. I just cannot get the information and discomfort files the hospital withheld from my solicitor and now my own personal SAR which has damaged my case for justice. Those at IG level are now refusing to discuss my lost MRI with me, but my report suddenly turns up after more than a decade after diagnosis is truly shocking to read. How a single MRI report in’s contents are split over multiple months is sickening and bevy disturbing to me. I cannot get anyone to answer for why they withheld this information from me and my GP practice is sickening, and horrifying. Has anyone has the same issues where hospital and GP file are so out of sync that the care you should have had still is not happenin?

I am really terrified of a hospital admission because my record is so Pi*s poor it would made wood wrap like the paper it’s written on. To have offer professionals ignored by a single persons actions is really sickening in a diagnosis he added to you you never had!

This record has since gone on to completely damage my legal rights in every violation you could imagine.

I feel like garbage treated like it and tossed aside by IG and record head we are not going to talk about your MRI anymore we are DONE!

Is anyone legal minded able to and my right to ICO and lied about me to them. While continuing to access my files after I declared my SAR non-compliant after a year of messing me about.

They still continue to harm me nearly driving me over the edge, that I could take no more after going into my Phycology records and sending them to me which I never asked for ever. These new laws of DUAA are supposed to give you more rights not take them away?

I feel violated beyond any personal boundaries or past invasive procedures as its effect on my mind is constantly being damaged by trauma and lack of care by my hospital Trust. How can I stop them when they lie not take unilateral actions saying Fu•• Off in a polite way you can tease from the letter tone is so unprofessional and lacking empathy . Is it a police matter if your records are suppressed for another 10 months after SAR was supposed to be completed already. They did we are not data rights holder as those who ordered it still are the data holders when it comes back to them if I read it right?

I am so sorry I hope it makes sense?

I totally forsaken where staff lied and consultants are guessing on my words we can’t see what he’s talking about when I see it in my SAR. To have IG department and complaints lying to OCO who will do nothing does anyone know how to represent themselves on a local court to a judge on your violation of rights? I’m at that stage for him or her to take control of my care as I am getting no where?

It feels already I have lost as a medical expert wrote a complete couple of garbage they is not truthful or coherent in my timeline

. . He is making a decision on justice that the hammer will fall on many not just one consultant is my biggest problem in systemic failure to provide fair care and honesty. Having a dr recently lie about me on encompass system is sickening and using my mind to say I did not understand the test ahead is lies in full honesty. Last thing intact is my honesty and my memory I still know what I we and hear and think are not contested by facts only a house of cards. Multiple consultants multiple departments not stepping out to stop the harm I find disturbing in a very real way. Anyone having similar issues or had on misdiagnosis or is it criminal when your MRI is not what is on your record. And still is not changed after report finally is found no one is talking about to me over, why?

Can anyone help me make sense of it all I feel they are individually now harming me in evidence suppression and tampering with my file this report I believe I never should have been given other than a very honest person putting my file together gave over. Why after a full year and in that time already given SAR last year in which I am made to believe is the full one.

It would take code breakers to put it together and that’s not a lie. None of it makes sense when the first part is a lie the lie spreads as a poisonous venom throughout your body which is my medical file.

Hir @BE74 with apologies, I’m finding it difficult to follow your post. To help would you mind explaining whether or not you have a diagnosis of MS, and w.hen that was given ?

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Yes I have MS for possibly now going on 20 years.

I cannot get open honest answers about my health when I need them going forward to consultants unable to find records in my SAR.

To unlock it you’d need a degree In patience, believe me I’m not anywhere close to figuring it out as my brain hurts thinking about it at times.

I thought SARs where easy to get not years for all information to come out. Does anyone know anyone who works in a radiology department and what happens if you flag a missing or different report than should be they don’t have on your MRI at all has vanished? I’m getting stonewalled in my local hospital and don’t know how to go around them when I asked for policy they ignored we can’t comment on your policy for era?

What? They should know or tell me where I can go when in charge of all digital data, this file should be as it was sent digital to their hospital to use on me. It’s used in reporting findings about me when I never believed I had at times, knowing it was worse as I had all signs of MS when they went you don’t. How do you fight that NHS problematic bureaucracy machine?
what about the duty of candour a patients right to know? Does not exist in NHS policy directorates for a SI or SAI deceleration I can’t get to happen after my really old reporting suddenly turned up.